Dr Simon Stones
he/him
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Award-Winning Medical Communications Specialist and Patient Advocate
Judge
Simon is an Award-Winning Medical Communications Specialist and an internationally renowned patient and carer advocate with over a decade of experience involving patients in health care services and research across the public and private sectors. In 2019 and 2020, he was recognised on The Shaw Trust Disability Power 100. In 2023, was awarded the inaugural Rising Star Award by the International Society for Medical Publication Professionals – an accolade intended to recognise future leaders in medical communications. Simon has been particularly active as a patient advocate in rheumatology, inspired by his own challenges of living with juvenile idiopathic arthritis from the age of 3. In 2024, Simon was elected to the role of Chair-Elect of the Patient Committee of the European Alliance of Associations for Rheumatology, representing over 120 million people living with rheumatic and musculoskeletal diseases across Europe.
There are so many people doing fantastic work, but often unrecognised. This isn’t the primary driver for most of us working in the space, but recognition is important and a lever to deliver further change. So firstly, please nominate! When you do so, please try to showcase all contributions, with measurable impact where possible. The more examples provided, the better – this helps judges to make decisions, but is also truly enlightening to read!
Be proud and confident of who you are, and your role in our world, though I know that can be easier said than done when you have faced discrimination. Know your rights, and remember that you can and should work in whatever sector you wish to do so, and that employers have an obligation to ensure you are supported. Speak up, and if you are worried, find somebody who can advocate on your behalf.
My work has broken down barriers – visible and invisible, surrounding disability. More people feel informed, empowered, and supported to achieve their goals, and more professional bodies have evolved their way of work to be more inclusive and collaborative with our community.
I want to see ableism become a thing of the past, where we have a truly inclusive, equitable world for all members of society. I will continue to advocate for my community in all that I do, to help us make the world a nicer place to live and thrive.
I love to travel, visit the theatre, and eat out (lots)… plus photography as well!
Seeing the world – we are truly blessed with a beautiful planet that we must protect at all costs!
Holistic, family-centred free healthcare for everyone
Removing ableist and paternalistic attitudes, helped by more disabled people in leadership positions.
Disability Power 100 profile information is self-submitted by the profile subject. Shaw Trust understands and respects that disability and impairment descriptors and language use varies from person to person. Shaw Trust assumes no responsibility or liability for any errors or discrepancies in the content of this, or any other, profile page.