Heidi Carter

Disability Advocate and Campaigner

Politics and Law
Image of Heidi Carter

I am a young woman with Down’s Syndrome (DS), I share my experiences and campaigns on my Facebook page: Heidi Crowter – Living the Dream. I advocate for better healthcare and independent living.

I have campaigned with Don’t Screen Us Out since 2016 about non-invasive prenatal testing. Currently abortions are allowed up to birth for severe disabilities in the UK. In 2021, I took the government to court to get this “downright discrimination” removed from the law. I am the first person with DS to take a government to court. I lost the case but am now appealing the High Court decision at the Court of Appeal.

I live with my husband, James. We got married in July 2020. I have written a book called I’m just Heidi about my life and campaigning, it should be published in October.

I hope my life shows parents of babies with DS that their baby can live a full and amazing life.

Mencap ambassador and patron of Positive about Down Syndrome